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Hintz's first child, Morgan, was born in 2011 with a large deletion on her second chromosome. One of the effects of this deletion is Dravet syndrome, a rare and catastrophic epilepsy for which there is no cure.
Hintz, like many other families continues to try and contain the seizures in her child with a cocktail of medications. Morgan now has a feeding tube because she can not eat, nor can she stand on her own, or play with any toys.
A recent documentary on CNN by Dr. Sanjay Gupta has shown that there is a surge of interest in controlling seizures with the use of medicinal marijuana.
Hintz then discovered that there are patients, children in particular, seeing amazing reductions in seizure activity using a form of medicinal marijuana. These specifically grown plants contain only trace amounts of THC.
The side effects? Increased appetite, improved sleep patterns, improved gait/balance, better overall cognitive function and a reduction on the number of daily medications.
When Hintz discovered that New York University was engaging in a study about the effect that medicinal marijuana can have on pediatric seizures, her mind was made up.
Hintz now finds herself on a crusade to potentially save the life of her daughter, if only she can get the lawmakers to see things her way in time.
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